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http://repositorio.pediatria.gob.mx:8180/handle/20.500.12103/2725| Título : | Primary Immunodeficiency Diseases in Aguascalientes, Mexico: Results from an Educational Program |
| Creador: | Álvarez Cardona, Aristóteles |
| Nivel de acceso: | Open access |
| Palabras clave : | Adolescente Adulto niño preescolar Relaciones Comunidad-Institución Femenino Conocimientos, Actitudes y Práctica en Salud Humanos Síndromes de Inmunodeficiencia - diagnóstico Síndromes de Inmunodeficiencia - epidemiología Síndromes de Inmunodeficiencia - inmunología Lactante Recién nacido masculino México - epidemiología Mediana Edad Selección de Paciente Prevalencia Remisión y Consulta - estadística & datos numéricos Sistema de Registros Adolescent Adult Child Child, Preschool Community-Institutional Relations Female Health Knowledge, Attitudes, Practice* Humans Immunologic Deficiency Syndromes/diagnosis* Immunologic Deficiency Syndromes/epidemiology* Immunologic Deficiency Syndromes/immunology Infant Infant, Newborn Male Mexico/epidemiology Middle Aged Patient Selection Prevalence Referral and Consultation/statistics & numerical data Registries Enfermedades de inmunodeficiencia primaria; toma de conciencia; programa educativo Primary immunodeficiency diseases; awareness; educational program |
| Descripción : | Purpose: Primary immunodeficiencies (PIDs) are a heterogeneous group of disorders characterized mainly by recurrent infections. Late diagnosis remains as one of the main issues to solve. We aimed to increase PID diagnosis in Aguascalientes, a 1.3 million inhabitants state in the center of Mexico, and to describe the clinical features of such patients. Methods: We developed an educational program for health personnel and general public; patients with possible PID were referred to a State University clinical center from December 2011 to December 2012. The patients were evaluated at the clinic and their definitive diagnosis pursued through laboratory, molecular and genetic assays. We describe the findings of those patients and analyze the impact of the program in terms of number of referrals. Results: After 41 talks and 12 media appearances 151patients were referred for evaluation. Fifteen (9.9 %) were diagnosed with PID: five (33 %) had antibody deficiencies, seven (47 %) Well-defined syndromes, two (13 %) Severe combined Immunodeficiency (SCID) and one case (7 %) of an innate immune deficiency. All of the 15 PID patients had been referred by physicians, as opposed to the public. We estimated a “number needed to teach†of 75 physicians to get one PID patient referral. Conclusion: Educational programs are a fundamental part of the global efforts to increase PID diagnosis and care. To be successful, such programs should include public relations, reach for first-contact physicians, and aim to develop an efficient referral network with molecular diagnostic capability. Enhancing medical knowledge on PID is a successful strategy to improve early diagnosis and treatment. © 2016, Springer Science+Business Media New York. |
| Colaborador(es) u otros Autores: | Espinosa-Padilla Sara Elva Lugo Reyes Saul Oswaldo Ventura-Juarez Javier Lopez- Valdez Jaime Asael Martínez-Medina Lucila Santillan-Artolozaga Alberto Cajero-Avelar Adriana De Luna-Sosa Alma R. Torres-Bernal Luis F. Espinosa-Rosales Francisco J. |
| Fecha de publicación : | 2016 |
| Tipo de publicación: | Artículo |
| Formato: | |
| Identificador del Recurso : | 10.1007/s10875-016-0242-0 |
| Fuente: | Journal of Clinical Immunology 36(3):173 - 178 |
| URI : | http://repositorio.pediatria.gob.mx:8180/handle/20.500.12103/2725 |
| Idioma: | eng |
| Aparece en las colecciones: | Artículos |
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